Caring for families who continue the pregnancy after their baby
is diagnosed with a life-limiting condition.
August 12 (evening) and 13 (all day)
Radisson Hotel, La Crosse, WI
Held annually in La Crosse, WI, and with all new content every year, Blueprint for a Perinatal Palliative Care Program workshop is intended for healthcare professionals who want to provide the best care possible to families who continue their pregnancy after learning their baby has a life-limiting condition. Clinically-based, practical, and systems-oriented, this workshop comes from our experience of integrating perinatal palliative care into our already-existing bereavement program, Resolve Through Sharing. This workshop provides an exceptional educational opportunity and a blueprint for applying what you learn in your own setting.
This year's workshop (second annual) provides all new information with the same purpose: to provide an evidence-based approach to working with families when their baby is diagnosed during pregnancy with a life-limiting condition.
The opening keynote features nationally known speaker and author, Amy Kuebelbeck, and Annette Klein, the nurse who provided palliative care for Amy and her family as they waited for their son Gabriel’s birth.
Practical, clinically-based, systems oriented, Blueprint for a Perinatal Palliative Care Program comes from our experience of integrating perinatal palliative care into our already-existing bereavement program, Resolve Through Sharing.
This year’s program features presentations on birth planning, genetics, interdisciplinary team relationships, and practical information on program components. We continue the work-group format that allows you to delve deeply into a topic with your colleagues. You will also receive a tool kit. This workshop provides an exceptional educational opportunity and a blueprint for applying what you learn in your own setting.
Purpose: This workshop is designed to provide an evidence-based approach to working with families when their baby is diagnosed during pregnancy with a life-limiting condition.
Objectives:
- Describe three key elements of a birth plan.
- List key processes in implementing a perinatal palliative care program.
- Discuss information parents need about Trisomies 13 and 18.
- List three common fears parents have in anticipating the birth of a baby with a life-limiting condition.
- Describe communication barriers among interdisciplinary team members.
- De fine the relationship between self awareness and self care.
Who should attend? Target audience includes nurses, social workers, clergy, funeral directors and other community professionals, hospice staff, palliative care providers, physicians, genetic counselors, ultrasonographers, and other professionals who interact with bereaved families in hospitals, clinics, hospices, and home health. The course is designed for intermediate level social work
practice.
Approved contact hours/continuing education credits: Participants must attend both evening and day sessions to earn contact hours and/or continuing education clock hours. No partial credit will be given. Certificate of continuing education credit (contact hours and/or clock hours) will be awarded on site upon completion and return of the program.
The National Society of Genetic Counselors (NSGC) has authorized the 2nd Annual Blueprint for a Perinatal Palliative Care Program to offer up to .85 CEUs or 8.5 Contact hours (Category 1) for 2nd Annual Blueprint for a Perinatal Palliative Care Program. The American Board of Genetic Counseling (ABGC) will accept CEUs earned at this program for the purposes of certification and recertification.
Registration Fee: $225 ($250 after August 1)
Fees include instruction, materials, continuing education credit, lunch, recepetion, and breaks.
Payment: Full payment must be received two weeks prior to the conference (July 30). Pay by Visa, MasterCard, Discover, or check payable to Bereavement Services. Registrations received after the two-week deadline are subject to a $20 late processing fee, and are payable by Visa, MasterCard, and Discover only.
Substitutions and Transfers: If you are registered and cannot attend, you can transfer your registration to a colleague in your institution up to two weeks prior to the conference for a $15 administrative fee.
Cancellation Policy: We offer a full refund minus $25 cancellation fee if you cancel by Thursday, August 5. We do not offer refunds if you fail to notify us that you cannot attend.
Agenda
| August 12 | |
| 5:30-6:00 pm | Registration, light hors d'oeuvres |
| 6:00-6:10 | Welcome Rana Limbo, PhD, RN, PMHCNS-BC |
| 6:10-7:30 |
Keynote presentation |
| 7:30-7:35 | Stretch break |
| 7:35-8:15 | Work groups |
| 8:15-8:30 | Work group report outs and closing |
| 8:30 & after | Informal networking |
| August 13 | |
| 7:30-8:30 am | Continental breakfast and networking |
| 8:30-9:15 | Your blueprint: Starting, soaring, or somewhere in between Waneeta Everson, BSN, RN |
| 9:15-9:45 | Work group |
| 9:45-10:00 | Break |
| 10:00-10:45 | Understanding Trisomies 13 and 18: Genetics services and parent education Kevin Josephson, MS, CGC |
| 10:45-11:30 | Parent voices: Fears and reflections Amy Kuebelbeck, MA |
| 11:30-12:00 | Work groups |
| 12:00-1:00 pm | Lunch |
| 12:30-1:00 | Book signing - Amy Kuebelbeck, author of "Waiting with Gabriel: A Story of Cherishing a Baby's Brief Life" |
| 1:00-2:00 | Building a clock: A masterful metaphor for perinatal palliative care design and implementation Peggy Humm, MSN, RN |
| 2:00-2:45 | Interdisciplinary team communication Marie walter, MS, RN |
| 2:45-3:00 | Break |
| 3:00-3:30 | Beyond long walks and bubble baths: Self-awareness as self care Annette Klein, RN |
| 3:30-4:00 | Work groups |
| 4:00-4:20 | Identifying "What's next?" Group discussion Moderator: Waneeta Everson |
| 4:20-4:30 | Summary, evaluation, closing |
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Related Course: RTS Coordinator Advanced Training: Combination rate for registering for both Blueprint and Advanced Training: $395 Must be an RTS Coordinator to attend Advanced Training.
If you have any questions or concerns about this course, require special assistance or accommodations, or have special dietary needs or food allergies, please contact Laurie Bushek at ljbushek@gundluth.org.
